WORK PACKAGE
WP6
NCRI & IKNL & NIPH & ISS & FISABIO
| DELIVERABLES |
| Report on improvements related to availability, accuracy, completeness and timeliness of follow-up variables for cancer records enabling computation of survival and prevalence indicators |
| Report on the development and implementation of national strategies and guidelines aligned with union data quality standards, with the aim to improve data accuracy, timeliness, coverage and completeness, as well as include further variables and improve the availability and timeliness of survival and prevalence indicators |
| Blueprint for enhancing collaboration and possible data linkage between PBCRs and other relevant registries (e.g. screening, vaccinations, socio-economic data) |
| Assessment of implications of the EHDS for PBCRs and development and implementation of strategies to ensure compliance with EHDS requirements, including for creating a metadata catalogue |
| Establishment of Health DCAT-AP compliant metadata catalogues across PBCRs and integration in the currently established national metadata catalogue, to ensure ease of access through the EU datasets catalogue in the future |
| Report describing data access governance for ENCR/ECIS data |