WORK PACKAGE
WP1
NIPH & OIL
| DELIVERABLES |
| White paper on needs and scope of JA |
| Project Handbook |
| Joint Action indicator Evaluation |
WORK PACKAGE
NIPH & OIL
| DELIVERABLES |
| White paper on needs and scope of JA |
| Project Handbook |
| Joint Action indicator Evaluation |
WORK PACKAGE
INKL & ICO
| DELIVERABLES |
| Dissemination Plan |
| Website, visual identity and social media |
| Stakeholder analysis |
| Communication and Dissemination Report |
| Project Leaflet |
WORK PACKAGE
CIPH & FFIS-RMURCIA
| DELIVERABLES |
| Evaluation Plan |
| Quality Assessment Report |
| Final Evaluation Report |
WORK PACKAGE
LIH
| DELIVERABLES |
| Sustainability agenda |
| Sustainability report |
WORK PACKAGE
OIL & CS-RMURCIA & NIPH
| DELIVERABLES |
| Guidelines and standards for essential infrastructure, harmonisation and continuous development of high-quality PBCRs for cancer control |
| Proposal of a mechanism for centralised governance and support of PBCRs in Europe for continuous improvement, development and innovation: the European hub for cancer registry development and harmonisation |
| Report and guidelines on PBCR automated procedures and automation models (Input from both T5.2 and T5.3) |
WORK PACKAGE
NCRI & IKNL & NIPH & ISS & FISABIO
| DELIVERABLES |
| Report on improvements related to availability, accuracy, completeness and timeliness of follow-up variables for cancer records enabling computation of survival and prevalence indicators |
| Report on the development and implementation of national strategies and guidelines aligned with union data quality standards, with the aim to improve data accuracy, timeliness, coverage and completeness, as well as include further variables and improve the availability and timeliness of survival and prevalence indicators |
| Blueprint for enhancing collaboration and possible data linkage between PBCRs and other relevant registries (e.g. screening, vaccinations, socio-economic data) |
| Assessment of implications of the EHDS for PBCRs and development and implementation of strategies to ensure compliance with EHDS requirements, including for creating a metadata catalogue |
| Establishment of Health DCAT-AP compliant metadata catalogues across PBCRs and integration in the currently established national metadata catalogue, to ensure ease of access through the EU datasets catalogue in the future |
| Report describing data access governance for ENCR/ECIS data |
WORK PACKAGE
BCR & CSF & JRC & BERGONIE
| DELIVERABLES |
| Provision of Aggregated Data for Survival and Prevalence Indicators |
| Infrastructure report |
| ECIS Roadmap |